Basics of Hepatitis B training event flyer

Hepatitis B Training – The Basics of Hepatitis B


Training Level: Community & Organizational

Thursday, February 18th, 2021 from 2:00 – 3:00 PM Eastern

The Basics of Hepatitis B Learning Objectives:

• Prevalence of Hepatitis B

• Hepatitis B Prevention

• Population at Risk, Screening, and Linkage to Care

This presentation will last approximately 30 minutes with a question and answer period to follow.


Presenter:

Monica Lattimore, BS PA-C
Medical Scientist Liver Diseases
Medical Affairs
Gilead Sciences

Register today: https://cutt.ly/HIV-Feb2021

Addressing Uncertainties with Confidence Educational Track: Hepatitis C Thursday, January 21st, 2021 2:00 - 3:00 PM Eastern Presenter: Monica Lattimore, BS PA-C Medical Scientist Liver Diseases Medical Affairs Gilead Sciences The WHO has identified HCV as a public health threat and has outlined steps needed to eliminate HCV by 2030. Currently, only 11 countries are on track for HCV elimination. Sadly, the United States is not one of them. Furthermore, the COVID-19 pandemic has resulted in HCV programs slowing or stopping altogether. Join us in a series of discussions on how we can successfully eliminate Hepatitis C and close the gap in screening and linking patients to care. Register today: https://cutt.ly/Hep-C-0121

Viral Hepatitis Training: Addressing Uncertainties with Confidence

Addressing Uncertainties with Confidence

Educational Track: Hepatitis C
Thursday, January 21st, 2021
2:00 - 3:00 PM Eastern

Presenter:

Monica Lattimore, BS
PA-C Medical Scientist
Liver Diseases
Medical Affairs
Gilead Sciences

The WHO has identified HCV as a public health threat and has outlined steps needed to eliminate HCV by 2030.

Currently, only 11 countries are on track for HCV elimination. Sadly, the United States is not one of them. Furthermore, the COVID-19 pandemic has resulted in HCV programs slowing or stopping altogether.

Join us in a series of discussions on how we can successfully eliminate Hepatitis C and close the gap in screening and linking patients to care.

Register today:

https://cutt.ly/Hep-C-0121

Addressing Uncertainties with Confidence

Educational Track: Hepatitis C
Thursday, January 21st, 2021
2:00 – 3:00 PM Eastern

Presenter:

Monica Lattimore, BS
PA-C Medical Scientist
Liver Diseases
Medical Affairs
Gilead Sciences

The WHO has identified HCV as a public health threat and has outlined steps needed to eliminate HCV by 2030.

Currently, only 11 countries are on track for HCV elimination. Sadly, the United States is not one of them. Furthermore, the COVID-19 pandemic has resulted in HCV programs slowing or stopping altogether.

Join us in a series of discussions on how we can successfully eliminate Hepatitis C and close the gap in screening and linking patients to care.

Register today:

West Virginia Statewide Stakeholder Coalition November 2020 Meeting Flyer

WVSSC Meeting – November 9th, 2020

An image of the New River Gorge Bridge with the words "WV Statewide Stakeholder Coalition" above it

The November 2020 meeting of the WVSSC will take place on Monday, November 9th, 2020 from 2:00 – 4:00 PM


This month’s meeting features the following guests:


Substance Abuse and Mental Health Services Administration

Photo of Dr. Neeraj "Jim" Gandotra

Dr. Neeraj “Jim” Gandotra
Chief Medical Officer
(SAMHSA)

Photo of Dr. Jean Bennett

Dr. Jean Bennett
SAMHSA Regional Administrator
Region III


Substance Use Disorder

Photo of Stephanie Lancaster

Stephanie Lancaster
Director of Community Health Solutions
Indiana, Ohio, & West Virginia
Emergent BioSolutions


HIV

Photo of Shawn Balleydier

Shawn Balleydier
Assistant Director
Director of HIV Prevention and Care
Division of STD, HIV and TB
Office of Epidemiology and Prevention Services
Bureau for Public Health/WVDHHR


Viral Hepatitis

Tiffany West
Gilead Sciences


Members of the WVSSC

Community Education Group Resource Guide Image of the New River Gorge Bridge at night with the words "Connecting You to West Virginia - The Resources West Virginians Need for SUD, Hepatitis, and HIV

Community Education Group Launches New Health Resource Guide

SHEPHERDSTOWN, WV (October 19, 2020) – The Community Education Group has launched a new West Virginia Statewide Resource Guide that helps people in the state access resources for HIV, Substance Use Disorder (SUD), and Viral Hepatitis services.

This new digital Resource Guide lets users select their county of residence using an interactive map, which takes them to a dedicated page detailing the providers and organizations available in their area.

“One of the biggest challenges facing West Virginians is not knowing where to go when they’re seeking testing, treatment, or services for HIV, SUD, and Hepatitis,” said A. Toni Young, CEG’s Founder and Executive Director. “With this new guide, CEG is seeking to help West Virginians find the resources they need where they live, as well as to identify gaps in services which will allow us to develop better partnerships and strategies that will expand access to services to fill those gaps.”

The West Virginia Statewide Resource Guide continues to expand and seek input from CEG’s three primary stakeholder groups: Communities, Organizations, and Providers. Users may submit new or overlooked HIV, SUD, Hepatitis, and other resources for inclusion and listing under the appropriate county by filling out a simple form.

Community Education Group (CEG) is a 501(c)3 not-for-profit organization working to eliminate disparities in health outcomes and improve public health in disadvantaged populations and under-served communities.

New River Bridge Bridge Day Celebration

Community Education Group Forms West Virginia Statewide Stakeholder Coalition

FOR IMMEDIATE RELEASE

Public Health and Community Organizations Join Forces to Combat Triple Threat of Substance Use, HIV, Hepatitis Outbreaks in West Virginia

New Coalition Will Take on Rising Infection Rates and Drug Overdose Deaths in the State

SHEPHERDSTOWN, W.Va. SEPTEMBER 17, 2020 – The West Virginia Statewide Stakeholder Coalition (WVSSC) convened for the first time on September 1, 2020, to address West Virginia’s growing “syndemic” of HIV/Hepatitis C (HCV) outbreaks and drug overdose deaths. The group’s primary mission is to break down technical, regulatory, and administrative barriers that limit testing, treatment, and support across HIV, viral hepatitis, and substance use disorder [SUD] programs. Such barriers create “treatment silos” that fail to reflect the medical and social realities behind the interrelated health crises—and thereby impede effective intervention.

The meeting was convened by the health advocacy organization Shepherdstown-based Community Education Group (CEG). CEG formed the new statewide coalition aimed at stemming the rising tide of fatalities and HIV and viral hepatitis infections driven by West Virginia’s ongoing opioid crisis. 

“We are facing an unprecedented Substance Use Disorder epidemic in West Virginia,” said A. Toni Young, Founder and Executive Director of CEG. “An epidemic that is directly linked to our state’s highest-in-the-nation rates of Viral Hepatitis, to three HIV outbreaks in the past four years, and to the highest rate of drug overdose deaths in the nation. It constitutes an immediate and ongoing threat to public health, requiring a proportional response. The West Virginia Statewide Stakeholder Coalition assembles the expertise and collaborative strategy to spearhead that response.”

The WVSSC will focus on expanding awareness, education, rapid testing for HIV and Viral Hepatitis, treatment for SUD, and linkage-to-care networks which refer those recently diagnosed with HIV or Viral Hepatitis to treatment resources. 

The first WVSSC meeting brought together 65 individuals and organizations including state government and public health officials, healthcare providers, national organizations, school board officials, community-based organizations, and others from across West Virginia. 

Representatives attendees for WVSSC include: West Virginia Department of Health and Human Resources; the Bureau for Public Health; the Office of Epidemiology and Prevention Services; the Office of Laboratory Services; the Office of Drug Control Policy; the Doddridge, Marion, Marshall, Mid-Ohio Valley, and Monongalia County Health Departments; Berkeley County Schools; the Hancock County Commission; the Jefferson Berkeley Alliance on Substance Abuse Prevention; the United Ways of Central WV, Marion, and Taylor Counties; Community Connections; David Medical Center; the Eastern Panhandle Regional Planning and Development Council; Eastridge Health Systems; EnAct, Inc.; the Family Resource Networks in Fayette, Gilmer, and Jackson Counties; the Morgan County Homeless Coalition; the Regional Intergovernmental Council; the West Virginia Institute of Community and Rural Health; West Virginia University; and many other private and public community members from across the state.

WVSSC’s primary goals include: 

1.)   Working to deconstruct disease state silos between Substance Use Disorder, HIV, and Viral Hepatitis by increasing awareness, education, and building linkages to care and treatment networks;

2.)   Working to expand HIV screening, rapid testing, surveillance, treatment, and linkage to care throughout West Virginia, reaching into hard-to-reach and hard-to-treat parts of the states;

3.)   Helping to develop statewide elimination plans for HIV and Viral Hepatitis;

4.)   Developing statewide working groups focused on SUD, HIV, and Viral Hepatitis;

5.)   Offering educational opportunities to Providers, Organizations, and Consumers centered around HIV, Substance Use Disorders, and Viral Hepatitis

NEXT MEETING: The next open meeting of WVSSC will be held on October 13, 2020, at 2:00 PM ET.  All are invited. Sign up by filling out the form at this address

Inaugural West Virginia Statewide Stakeholder Meeting a Resounding Success

#CEGInWV hosted a very successful inaugural West Virginia Statewide Stakeholder Meeting, on Tuesday, September 1st, 2020.

The meeting brought together 65 individuals and organizations, including state government and public health officials, healthcare providers, national organizations, school board officials, Community-Based Organizations, and others from across West Virginia.

CEG’s Founder and Executive Director, A. Toni Young, presented about CEG’s work in the state of West Virginia, including the following:

  1. Working to deconstruct disease state silos between Substance Use Disorder, HIV, and Viral Hepatitis by increasing awareness, education, and building linkage to care networks;
  2. Working to overturn West Virginia’s 2007 legislative moratorium (§16-5Y-12) on new Opioid Treatment Programs that offer Methadone for use as Medication-Assisted Treatment (MAT);
  3. Working to expand HIV screening, rapid testing, surveillance, treatment, and linkage to care throughout West Virginia, reaching into hard-to-reach and hard-to-treat parts of the states;
  4. Working with the West Virginia Bureau for Public Health, Department of Health and Human Resources, and Office of Laboratory Services to clarify, adapt, and revise West Virginia’s HIV testing statute (§64-64);
  5. Working to increase Viral Hepatitis vaccination, testing, surveillance, and treatment services throughout the state;
  6. Helping to develop statewide elimination plans for HIV and Viral Hepatitis;
  7. Developing statewide working groups focused on SUD, HIV, and Viral Hepatitis;
  8. Establishing regular statewide stakeholder meetings to discuss strategies for addressing West Virginia’s most pressing public health needs.

Toni was joined by Ana Paula Duarte (Southern AIDS Coalition), Adrienne Simmons (National Viral Hepatitis Roundtable), Nicole Elinoff (National Alliance of State and Territorial AIDS Directors – NASTAD), and Mike Weir (NASTAD), all of whom presented on their respective areas of expertise.

The video of this first meeting has been made available on CEG’s YouTube channel (here), and the full meeting was streamed live on CEG’s Facebook page (here). You can also download the slides used during the meeting by clicking on their respective buttons.

Thank you, to everyone who attended this first meeting, and we look forward to working with our partners across West Virginia to build a stronger community, one project at a time.

Photo of an outline of the state of West Virginia made out of white powder, presumably heroin or cocaine, and a rolled up straw for snorting it

Community Education Group Launches West Virginia Opioid Treatment Survey

Photo of an outline of the state of West Virginia made out of white powder, presumably heroin or cocaine, and a rolled up straw for snorting it

CEG has launched a statewide survey for providers and People Who Use/Inject Drugs (PWUD/PWID, respectively) focusing on West Virginia’s 2007 legislative moratorium on opening any new Opioid Treatment Programs in the state.

In 2007, the West Virginia state legislature enacted a legislative moratorium (§16-5Y-12) on the opening of new Opioid Treatment Programs (OTP), halting in place the number of programs that prescribe and dispense Methadone for use in Medication-Assisted Treatment (MAT) to treat Opioid Use Disorder (OUD).

This moratorium limited the number of OTPs in the state to only 9 sites, statewide, who can legally provide MAT services using Methadone. It also prevents these facilities from opening secondary satellite locations, essentially locking in place where people can seek inpatient or outpatient MAT services using Methadone.

Since the passage of (§16-5Y-12), West Virginia’s opioid addiction crisis has raged out of control, leaving with the highest rate of Drug Overdose Deaths, the highest rate of new Hepatitis A infections, the highest rate of new Hepatitis B infections, and the second-highest rate of new Hepatitis C infections in the United States in 2018. In addition, Injection Drug Use (IDU) of both opioids, and stimulants accounted for 91 (62.3%) of the 146 new HIV infections in West Virginia in 2019.

The survey will gauge awareness of West Virginia’s 2007 Moratorium on the expansion of existing or opening of new Opioid Treatment Programs, as well as attitudes related to West Virginia’s Opioid Addiction Crisis. There are also sections related to Substance Use Disorder (SUD), SUD/OUD Treatment Provision, and the provision of other services that are inextricably linked to West Virginia’s opioid addiction crisis.

This survey takes between 5-30 minutes to complete, depending on how many questions pertain to the person taking this survey. Not every person surveyed will be required to answer every question.

To participate in our survey, either fill out the form, embedded below, or click on the button. Please note: the form scrolls within the page.

Photo of a gloved hand holding two purple vacutainer tubes filled with a blood sample

Infectious Disease Testing in Rural America

Marcus J. Hopkins
Policy Coordinator
Community Education Group

By: Marcus J. Hopkins

When I first tested HIV-positive, I was living in Atlanta, GA.  It was April 12th, 2005, and I was 23 and unready to face my diagnosis.  I ignored it, for two years, in part of that unpreparedness, and in part because, at the time, the treatment recommendation was to not initiate treatment until patients were diagnosed as having AIDS, the qualification for which is having one’s CD4 cell count drop below 200 cells per mm3

On October 17th, 2007, after being admitted to Broward General in Ft. Lauderdale, FL, I had them run my numbers, after ignoring them for over two years, and that CD4 count came back at 67.

It was official – I had AIDS.

Once I got a doctor and got prescribed my medications, I went to a Rite Aid with my supposedly full-coverage employer-provided insurance, only to be told that, after filling the scrip for one of my three medications, my insurance was maxed out, and I wouldn’t be able to get the drugs I desperately needed.  I’m not really a big “crier,” but at that time, I wept in a pharmacy.

Luckily, my then-partner lived with a man who would later form the ADAP Advocacy Association (aaa+) who told me about the Ryan White Act and how to get coverage for my medications.  After jumping through several hurdles, including gathering tax documents, paycheck stubs, a birth certificate, two forms of photo identification, and selling a kidney (that last one isn’t a thing), I was able to get an appointment and get approved for the AIDS Drug Assistance Program (ADAP).

I began taking meds on November 19th, 2007, and by Valentine’s Day, 2008, my viral load (the number of actively replicating HIV virus in my blood) was undetectable, where I have remained, with the exception of two months, for over 13 years.

During that time, I have moved from Florida to Tennessee, from Tennessee to California, and from California to West Virginia, and during those moves, I encountered a unique phenomenon: HIV testing has largely failed to reach rural America.

I know, right?  It’s 2020 – nearly forty years after the Centers for Disease Control and Prevention (CDC) published the first article directly related to what was then called GRID (Gay-Related Immune Deficiency) in the June 5th, 1981 Morbidity and Mortality Weekly Report (MMWR) – Pneumocystis Pneumonia – Los Angeles (CDC, 1981).  One would think that, after four decades, rural America would have its collective “stuff” together and be testing its population, right?

Unfortunately, no.

Both in Tennessee (specifically, Northeast Tennessee in the Appalachian Mountains), and in West Virginia, outside of the few metro areas, HIV testing has not been a priority.  For the very same reason that doctors in this part of the country told patients not to worry about getting vaccinated for Hepatitis B (HBV), people living in rural America – particularly in the geographically isolated Appalachian Mountain region – have been living under the shared illusion that their isolation has served as a good enough preventative measure against infectious diseases.  Worse, still, is that these Americans have been told that this is the case, not only by physicians who should know better, but by the people whom they elect into office.

This has been a common refrain about every epidemic in human history:

“This is a big city problem!  We don’t have to worry about heroin/meth/HBV/HCV/HIV/STDs/STIs/COVID-19, here!  Our folks are better than that!”

This prevailing theme has been proven false not just in the recent past, but over the course of millennia.  The people who believed that the rich, the politically empowered, and the men of the cloth (e.g. – priests) would never contract the plague in 14th Century Europe are the very same people who have claimed that those of us who live in rural America don’t have to worry about the ills of urban society, because our “goodness” protects us.

Perhaps, they should go and reread accounts from the 14th Century that depict entire monasteries filled with the bodies of the dead.  If that’s too far back for them to look, they might simply look at the recently discovered rural Plague Pit found in Lincolnshire, England on the site of a 14th Century monastery filled with 48 bodies, including more than two-dozen children (Sharman, 2020).

Dr. Hugh Willmott, one of the workers at the Thornton Abbey archaeology dig site in rural England said this:

“The finding of a previously unknown and completely unexpected mass burial dating to this period in a quiet corner of rural Lincolnshire is thus far unique, and sheds light into the real difficulties faced by a small community ill-prepared to face such a devastating threat.” (Sharman)

This assessment of past preparedness should serve as a dark portent of things to come, not only as they related to the burgeoning rates of new HIV diagnoses directly linked to Injection Drug Use (IDU), such as West Virginia has seen in the past three years), but as it relates to another, more pressing concern: COVID-19.

Having lived in West Virginia, again, for seven years, and carrying the banner that reads: “We must begin offering opt-out testing for Viral Hepatitis and HIV to every single person at every single medical appointment, regardless of specialty” (a long, unwieldy banner to carry, to be certain), I, along with others who work in the Infectious Disease space, have been sounding the alarm about COVID-19, as well.  Sadly – and yet, unsurprisingly – I have encountered much the same mindset about COVID-19 as I did when waving the HIV testing flag: “It can’t happen, here.”

Once COVID-19 really hits rural America – particularly the geographically isolated Appalachian Mountain region (I know…I keep hammering this description home) – rural America is not ready to respond.  We do not have in place the kind of rural public health infrastructure that is necessary to effectively respond to an outbreak in rural regions.

People who travel from rural areas to the suburbs or urban areas of their state for work will contract COVID-19.  They will carry that virus back to their loved ones, at home, as well as to every person they encounter, along the way.

Once they begin to shed virus, every single point of contact becomes a potential point of infection.

Once they begin to show symptoms, they will have to travel back into the suburban and urban medical facilities for diagnosis, treatment, and, potentially, intensive care, and each person they encounter along the way has the potential to contract the virus.

This has been the course of every viral pandemic outbreak in human history.  It isn’t just a random prediction; it’s a pattern that repeats itself, every single time.  Sadly, Americans don’t seem to learn these lessons for ourselves, until someone we personally know and love dies.

Photo of the state of West Virginia outline with counties shaded red where confirmed cases of COVID-19 have been identified.  Counties without diagnoses are colored in grey.
Only four counties in West Virginia have no confirmed COVID-19 diagnoses

WBOY 12 in Clarksburg, WV has a running tally on new cases and deaths in the state of West Virginia (here) that reported an increase of 42 cases in the state since May 23rd, 2020 at 5:00 PM.  To most people, “42 new cases” doesn’t sound like a lot, compared to the overall population of the state.

When you think about the fact that those 42 patients will likely come into contact with at least three people (potentially creating 126 new diagnoses), and those three people will likely come into contact with at least another three people (378 more diagnoses, on top of the original 168)…like a 1980s Fabergé Organics shampoo commercial, only without the benefit of “…super fresh-smelling hair”.

Disclaimer: Blog posts on CEG’s Community Perspectives blog do not necessarily reflect the views of the Community Education Group, its grantors, its corporate sponsors, or its organizational partners, but rather they provide a neutral platform whereby each author serves to promote open, honest discussion about issues specific to their personal expertise, lived experience, and perspective. Please note that some of the content on Community Perspectives may be graphic due to the nature of the issues being addressed by the author.

It was these thoughts I was thinking, this morning, as I ventured to a Walmart in Grafton, West Virginia, to pick up something my mother had ordered, and saw only store employees and a handful of shoppers wearing facemasks (myself, included).

There was no social distancing; no facemasks to be found.  As I waiting to pick up my mother’s item, I listened to the haunting strains of Naked Eyes’ “Always Something There to Remind Me” and thought to myself, “I wonder if these people will remember this day as the day they contracted COVID-19.

References

Centers for Disease Control and Prevention. (1981, June 05). Pneumocystis Pneumonia — Los Angeles. Morbidity and Mortality Weekly Report, 30(21), 1-3. Retrieved from: https://www.cdc.gov/mmwr/preview/mmwrhtml/june_5.htm

Sharman, J. (2020, February 19). Medieval Black Death burial site in Lincolnshire uproots previous theories about plague. London, United Kingdom: Independent Digital News & Media Limited: The Independent: News: Science: Archaeology. Retrieved from: https://www.independent.co.uk/news/science/archaeology/black-death-mass-grave-uk-lincolnshire-thornton-abbey-plague-a9344091.html

CEG is a national organization that offers local programs and policy solutions.

We serving diverse populations, prioritizing indigenous populations and populations in need

CEG’s work includes Direct Service programs, Policy work, and Capacity Building

Disclaimer: Blog posts on CEG’s Community Perspectives blog do not necessarily reflect the views of the Community Education Group, its grantors, its corporate sponsors, or its organizational partners, but rather they provide a neutral platform whereby each author serves to promote open, honest discussion about issues specific to their personal expertise, lived experience, and perspective. Please note that some of the content on Community Perspectives may be graphic due to the nature of the issues being addressed by the author.

National Viral Hepatitis Roundtable logo

People Worth Knowing: Jesse Milan, Jr.

This week’s #PeopleWorthKnowing video interview features Jesse Milan, Jr., President and CEO of AIDS United, a national organization focused on policy, grantmaking, and capacity building.

AIDS United has granted over $120 million over 30 years, and its Public Policy Council organizations and current grantees number over 300 in 40 states and territories. Mr. Milan is a lawyer whose career includes leading HIV programs and organizations at national, regional and global levels. He has chaired five non-profit boards including the Black AIDS Institute, was AIDS Director for Philadelphia, has chaired federal advisory committees, and serves currently on the Scientific Advisory Board for PEPFAR. He is a graduate of Princeton University and the NYU School of Law. Jesse has been living with HIV for over three decades.

You can find out more about AIDS United by clicking on the logo below.